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Give Autism a Voice

Autism has impacted the families with children who have the disorder.

Your View Helps the Cause

You may or may not have heard of the band “Five for Fighting”, but probably are aware of autism and the impact it has on families whose children have been inflicted with this disorder.

The band “Five for Fighting” have generously pledged $.49 for each time their video is watched. These moneys are ear marked to help find a cure for autism:

In this video you will watch young children who have been diagnosed with autism. They are beautiful young children, but for the most part they are silent, unable to interact as a normal child would. They do not know how to tell someone that they are hungry, thirsty, and sleepy, in pain, or just simply express love or wonder. They cannot ask the endless questions children are prone to ask.

I have given thanks to God many times for giving me relatively healthy children. Sure they had childhood illnesses, and one was diagnosed with ADHD, but these are all treatable. Many insurance plans do not offer satisfactory treatment plans to help intervene in autistic children's lives and enable them to live a somewhat normal life. Early intervention can make all the difference in their ability to lead productive adult lives.

Warning Signs for Autism

These are not absolute indicators, but signals that a child should be evaluated. The earlier treatment begins the better chances for improvement.

  • No big smiles or other warm, joyful expressions by 6 months or after
  • No back and forth sharing of sounds, smiles or other interactions by 9 months or after
  • No babbling by 12 months
  • No back and forth gestures, such as pointing, showing, reaching or waving by 12 months
  • No words by 16 months
  • No two-word meaningful phrases except for imitating or repeating by 24 months
  • Loss of speech or social skills that the child earlier displayed

This information provided by First Signs, Inc. and available at Autism Speaks.

What is Autism?

It is a complex neurobiological disorder that typically lasts throughout one's lifetime. It is part of a group of disorders known as autism spectrum disorders or ASD. It is more common than pediatric cancer, diabetes, and AIDS combined, striking 1 in 150. It does not discriminate against race, socioeconomic groups, or ethnic groups, but is four times more likely to effect boys than girls. It impairs the victim's ability to communicate and relate socially. It also is associated with obsessive compulsive behaviors and the need of rigid routines and repetitive behaviors, with symptoms ranging from mild to quite severe.

Parents are usually the first to notice symptoms, while pediatricians often dismiss a parent's concerns with their “wait and see” attitude. Infants as young as 6 months have been diagnosed.

A two year treatment prior to the child entering school has been shown to significantly improve a child's symptoms. Effective programs should focus on development of communication, social and cognitive skills.

Individuals with Disabilities Act

The Individuals with Disabilities Act (IDEA) was revised in 2004 and renamed Individuals with Disabilities Education Improvement Act, however most are still saying IDEA.

This law mandates that states provide all eligible children with free and appropriate public education that is in keeping with their unique individual needs. Free legal support is provided for parents. It seems that there is not an agreement as to what is appropriate public education to meet the individual needs of each child.

For example, if you had been working closely with qualified personnel in an early intervention program for your child, you would be required to stop the current program and work with the special education department in your local school district. Early intervention focuses on the entire family and the interaction and impact of autism on the child and the family, where special education is concerned with providing the child with an adequate education.

Summation

Every good parent wants only the best for their children. These parents are not striving to spoil their children, just to give them lives that are close to normal. My heart goes out to them. If watching the above video can help to improve and make someone's life just a little richer, I will gladly watch it, and ask that you do the same. My children could tell me when they were hungry or didn't feel well. They talked my ears off, and for the most part, I loved it.

Thank you for participating in making someone else's life closer to normal. Yours will be richer for the effort.

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Comments (23)
#1 by CHAN LEE PENG, Jan 20, 2008
I haven't heard about this disease till I read this article. Great article, Judy, thank you. Take care!
#2 by Joe Poniatowski, Jan 20, 2008
It's clear from your article that there needs to be some consistency to the way the public schools approach these kids.
#3 by Anne Lyken-Garner, Jan 20, 2008
So sad. I was upset when my boy was diagnosed with dyspraxia and social anxiety, so I can imagine how much more devastated the diagnosis of autism is.
#4 by Alexa Gates, Jan 20, 2008
There's this one girl in my school who has this disease and she has to get all of this special help. I feel bad for her...
#5 by Judy Sheldon-Walker, Jan 20, 2008
Chan, Joe, Anne, and Alexa, thank you for reading and sharing your comments. Your support means a lot.
#6 by Jared Stenzel, Jan 20, 2008
The video makes you think twice about what you do with your money.
#7 by Judy Sheldon-Walker, Jan 20, 2008
Jared, I am so glad you watched the video. I don't care if anyone reads my article, but when you watch the video the band makes a contribution. Thank you, Jared.
#8 by IcyCucky, Jan 20, 2008
Judy,
I've added the video to my favorite so I can visit it every day. Your article is very educational, and very comprehensive. Thank you!
#9 by Judy Sheldon-Walker, Jan 20, 2008
Thank you, Icy. Your efforts are so appreciated.
#10 by Ruby Hawk, Jan 21, 2008
It is heartbreaking for the parents of a child who has autisum. As I understand it,there is no known treatment but doctors have had some success with different treatments. We need more grants to find a cure.
#11 by Judy Sheldon-Walker, Jan 22, 2008
Thank you for reading and commenting. Perhaps we can play a part in finding a cure.
#12 by valli, Jan 22, 2008
It is so sad and heartbreaking news for the parents if their child is diagnosed with autism. Your article is very informative.
#13 by Judy Sheldon-Walker, Jan 22, 2008
Valli, thank you for reading and leaving your comment.
#14 by lanne, Jan 22, 2008
Thank you for this article. Friends of ours have an autistic son who is eight. He was only diagnosed just before he started school, and the family has been to hell in back trying to deal with it. They were able to get help through the school board here in Ontario, but because of township boundries, they had to sell their dream home and move 3-4 miles away to be able to access the therapy needed.CRAZY!! Children with this disease are ALL entitled to help no matter where they live. Great article.
#15 by Judy Sheldon-Walker, Jan 23, 2008
Lanne, you are so welcome. My purpose of writing this article was to help this children and their families. The earlier the diagnosis and intervention, the better chance they have. Thank you for reading, and God bless your friends and their child.
#16 by writershirley, Jan 25, 2008
Thank you Judy, this info is very helpful and much needed for my own grandson --Shirley
#17 by Judy Sheldon-Walker, Jan 25, 2008
Shirley, I am saddened that you have had to experience the heart break of a child with autism. It is my hope that in writing this article, I might aid in raising awareness, treatments, and a cure for autism. Thank you for leaving a comment.
#18 by Moses Ingram, Feb 1, 2008
I had no idea this disease was so common. Thank you for an excellent article.
#19 by Judy Sheldon, Feb 2, 2008
Moses, thanks for reading anc commenting.
#20 by Louise S, Feb 3, 2008
I am Lucys sister. I would very much like to know where her comment has gone?

You are claiming to be trying to raise awareness, but the second someone who does know what they are talking about comes along and corrects you, you delete the comment. She has autism, she is far more qualified to speak on the matter than you are, she was trying to raise awareness on the true nature of autism, and you delete it.

Finding a cure to autism is like finding a cure for blue eyes. It\'s insane. Anyone who knows and loves someone with autism would understand that autism is not a disease that needs to be stamped out. It\'s a barrier that needs help and most importantly understanding for them to try and cross. It is of course harder for some children than others, but that doesn\'t make autism and ugly blot on thier personality that needs to be removed.

And just to repeat something my sister said, which has now gone (written in captials for emthasis, not to imply shouting):
AUTISM IS NOT A DISEASE
#21 by Judy Sheldon, Feb 3, 2008
Louise S, I apologize for the misconception, autism is a disorder, not a disease. After I found out how upset Lucy was yesterday, I nearly deleted my article. As I said in my first paragraph, the band "Five for Fighting" have pledged $.49 for everyone who views their video. I have seen varying degrees of autism. I have seen children who cannot speak or relate to others at all, and those who function very well. It was my hope to ease the transistion for those who cannot interact, as they have much better chances with early intervention. If the funds were collected, would they not go towards a fund earmarked to assist the families and children? If you want, I will delete this article. I am not in it for profit. Please advise. I await your response.
#22 by Loiza, Mar 2, 2008
AUTISM IS NOT A DISEASE!!!!!!! AND I DONT CARE IF I AM SHOUTING!
#23 by Judy Sheldon, Mar 2, 2008
Loiza, you are absolutely correct. I have requested a fix on my error, and apologize. If you stop back I do hope that Triond has it corrected by then.
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