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Autism, the Mystery Syndrome

For decades, medical experts were puzzled by the reasons for the bizarre behavior exhibited by some children both here in the U.S...

For decades, medical experts were puzzled by the reasons for the bizarre behavior exhibited by some children both here in the U.S. and in other parts of the world. Our family also personally experienced the similar long period of wonderment, having had a son diagnosed with this condition at an early age.

Most recently, we are told from medical experts here in the U.S. that children born today have a chance in 166 of being diagnosed with autism by the time they reach 3 years of age. Even today, this condition identified as childhood Autism is very puzzling and the behavior is sometimes very bizarre. The mystery, which it was to us, was that our son grew to slightly over 1 year old before we, or anyone else noticed anything unusual in the normal child development standards that we were aware of. He began saying "dada" and "mama" slightly before he reached one year old. He did not walk at one year, but many children don't either. It was when he reached about 14 months and abruptly stopped saying the words "dada" and "mama" that we realised there was something wrong. At first, we didn't want to believe it, but we began seeing his pediatrician and asking questions. Still, everyone would say, "he'll grow out of it". Eventually, we took our son to Mary Hitchcock hospital in the western part of New Hampshire for evaluation and after a couple of days of testing, he was finally diagnosed with Autism.

Some Things We Have Learned...And Wondered

Over the years, having lived with our son and experienced his ups and downs, his joys and sadness, as we could understand his reactions to life's daily stimuli, we still wonder about "him", as he is now approaching the age of 39 years and in the past several years living in a group home. Even with all those passing years, our son has not changed in his identity...i.e., he is still the son we have known from the beginning. At times, parents of an autistic child might wonder if it was something they did not give the child when they were in the early stages of their development, but the truth is that usually the autistic child is given much more attention than their siblings. It is not a matter of looking back at where a parent might have gone wrong in rearing the child, but to move on and treat the individual with the respect that is deserving and try to understand that individual as much as possible. Sometimes, one wonders if our son or daughter is now, or was born mentally retarded. We are told that autism is not a form of mental retardation and that some perform at a higher intelligence than normal. Even Albert Einstein was thought to have been autistic.

Will We Ever Learn The Mystery ?

There is much ongoing research into the possible causes of autism, but as yet no conclusive proof. Some seem to think that genetics might be the culprit and have found some clues from findings thus far, but there is much research in this area that has to be done before a method can be found that could possibly prevent it. One thing that is pretty conclusive is that autism is not caused by a lack of loving and caring for the child. I also have drawn an almost obvious conclusion from all of this and that is, in all of life's experiences, no one has ever conclusively been given reason for their actions, as to why they commit crimes of all sorts, taking their own lives for example, to kill others using explosives, as is being done in some parts of the world... then how can even the most well learned experts ever begin to know the source cause of Autism ?

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Comments (5)
#1 by Lucy Lockett, Jun 29, 2007
People are curious creatures and I am sure that we will get answers to our questions one day. Although we do not know why these come about, as long as the children have been loved is the most important thing.
#2 by francie, Aug 17, 2007
The spectrum of Autism is far reaching, nothing is conclusive. I am most familiar with Asperger's syndrome, named after Dr.Asperger. When personally affected through a family member you learn,read and try to make sense of the given situation. When armed with a good amount of information the only and best thing to do is love them a lot, make them feel worthy and important as they are. We then try to afford them the respect they deserve. Many have very high IQ's and in our case display such amazingly wonderful traits that the why's become fewer. You love them a lot, they can teach the best of us many valuable lessons. I know how much we suffer as parents, we ask questions that there are no concrete answers to. I personally think genetics does play a big part but of course there are many theories. Take heart in that you have a gifted child and like you mentioned they are not the one's committing terrific crimes in society. The pain can be immense but again take heart as the rewards received shine brighter.
Much blessings to you and your loved ones.
#3 by beauley, Lucien, Aug 17, 2007
We, my wife and I want to thank you for your concerned comments. I sense a note of personal involvement with Autism. At least, you are much more knowledgeable than most. Yes, our son is totally unique and now living under a provider's roof and we visit him regularly and bring him things he likes. Please let me know of your personal encounter, if you wish.
#4 by francie, Aug 22, 2007
The good news is, there is a lot of help out there, so we can take heart. The tough part is being the sole caregiver and single parent...it can worry you to death. I speak from many other's realities also, it's a tough and painful road. If you find trusted and good care at least that's the biggest hurdle overcome. To see our kids happy and well adjusted is hopefully every parents dream. Our kids turn to us for answers and when we try our darn hardest but can not come up with the help they have learned to count on, it's really tough. The bright spot is when we can assure them of a better outcome, we have to. Then to help
convince ourselves! If this comes together we have done our job well.

Sounds like you guys are doing just that...I wish you all the joys and happiness that you are deserving of. Just by seeing your pictures I can tell a lot. If you enjoy life in this fashion you have done well!

Take Good Care!
francie
#5 by beauley, Lucien, Aug 23, 2007
Thank you again, francie, for your words of wisdom. You certainly voice a much experienced life. Our son is all grown up and in his 30's and still suffers the original symptoms, but is happy living away from home. We appreciate your kind comments.
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